The Andalusian Registry of Sample Donors for Biomedical Research is announced to the Agrafim Association
Professionals from the Biobank of the Public Health System of Andalusia (SSPA) have presented the Registry of Sample Donors for Biomedical Research to the members of the Granada Association of Fibromyalgia, Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) and Multiple Chemical Sensitivity (Agrafim).
The meeting, organized by Agrafim, took place on December 2 at the headquarters of the Official College of Physicians of Granada, where more than 60 people attended, including associates and family members.
The Biobank professionals explained some of the tools that Andalusians have at their disposal to participate in biomedical research, such as the biobank and the Donor Registry and the importance of donating samples and data for research. After the presentation, attendees were invited to sign up for the registry.
As a result of this meeting, the Donor Registry has incorporated more than 20 potential donors into its database who are now available to participate in research projects. Incorporation into the Registry of Donors of Samples for Biomedical Research remains open and interested persons can call 958 894 669, write to registry.donantes.csalud@juntadeandalucia.es or register at www.soydonanteparainvestigacion.es
About the Biobank
The Biobank of the Public Health System of Andalusia is organized as a network biobank formed by different associated nodes on provincial platforms, linked to health institutions and with a Coordination Node located in Granada. As a network biobank, it constitutes a resource platform that offers all types of biological samples and associated clinical data to researchers. At the same time, the Network of Tissue and Cell Transfusion Centers offers healthcare activity in this area framed in the structure of the Andalusian Health System (SAS).
Integrated into the Biobank is the Andalusian Registry of Sample Donors for Biomedical Research, which is a tool that allows Andalusians to participate directly in the development of research through a database in which basic identification information is collected. and health of people interested in participating, who can donate any biological sample of human origin such as blood, tears, saliva, hair, nails, feces, urine, sweat, etc.
The body responsible for the Registry is the General Secretariat of Research, Development and Innovation in Health of the Ministry of Health and Families, and the SSPA Biobank is in charge of its management.
About Agrafim
The Granada Association of Fibromyalgia, Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) and Multiple Chemical Sensitivity is a group made up of people affected by some of these ailments and their families, as well as collaborators and a team of professionals with extensive experience in these chronic diseases. .
Among the objectives of this association are:
– Awareness, information and advice.
– Promotion and cooperation with research studies.
– Improve the quality of life of affected people and their family environment, by offering a framework of biopsychosocial actions, trying to respond to their demands and needs.