I Provincial Congress of Multiple Sclerosis
Date: October 30 and 31, 2019
Place: Aula Magna of the Faculty of Sciences of the University of Granada, Granada
The Granada Association of Multiple Sclerosis (AGDEM) has organized the I Provincial Congress of People and Multiple Sclerosis under the motto of #DePersonasaPersonas that will take place on October 30 and 31 in the Aula Magna of the Faculty of Sciences of Granada with the recognition of Scientific Health Interest granted by the Junta de Andalucía.
The objective of the Organizing and Scientific Committee is to hold a congress that, based on current events and scientific evidence, provides all attendees with the reality of people affected by the disease, that of their families, caregivers and friends, thus involving the person affected throughout the program and development of the congress.
The organization of the congress has invited the Biobank of the Public Health System of Andalusia to participate in the event with a presentation on the Andalusian Registry of Sample Donors for Biomedical Research and a permanent information point where those attending the event can register for the Registry. .
All the information and the program in:
http://www.agdem.es/index.php/activityes/2019/300-congreso-personas-y-esclerosis-multiple
ReVECA Presentation Day
Date: June 19, 2019
Location: Institute of Biomedicine of Seville, Seville
The ReVECA Registry for people interested in participating in clinical trials in Andalusia is a tool that facilitates the procedure to voluntarily participate in clinical trials and advance research into therapeutic alternatives and innovative treatments.
It is a citizen participation tool that came into operation in January 2018, being the first Registry of this type to be launched in Spain. It was created by Decree 201/2017, of December 19, and had European financing through the European Regional Development Fund (ERDF).
During the day, two major topics will be addressed: the importance of citizen participation in clinical research and the ethical aspects of citizen participation tools and the legal aspects of clinical trials.
To address the issue of citizen participation, the Ministry of Health and Family has invited the Biobank of the Public Health System of Andalusia to present its experience with the Andalusian Registry of Sample Donors for Biomedical Research (REDMI), created by Decree 1090. /2015, of June 23, a registry that allows citizens to actively participate in research by donating biological samples and their associated data. Verónica Valdivieso will present the good health status of the REDMI, and will highlight the importance and usefulness of these Registries as tools to support research work and patients.
More information at: https://www.juntadeandalucia.es/salud/reveca
II Carrera Medicus Mundi Sur
Date: June 2, 2019
Place: Granada.
The Medicus Mundi Sur Solidarity Race is a sporting event that combines health and sport, being a road test with a popular solidarity nature, but at the same time competitive for those athletes who wish to do so.
This race is organized by Medicus Mundi Sur and its main objective is not economic but to make known that the NGO is celebrating 41 years serving the most disadvantaged in the world. The race will have 4 different modalities that will take place in the Zaidín neighborhood and the Health Sciences Technology Park area.
The Biobank of the Public Health System of Andalusia will once again join this health and sports festival that will take place in Granada on June 2. The Biobanco will set up a stand at the finish line, located on the esplanade of the Cármenes Stadium, where it will inform participants and attendees of the event about the Andalusian Registry of Sample Donors for Biomedical Research. In addition, information material will be added to the bags of each of the runners. The main purpose of this action is to publicize the existence of tools that allow citizens to participate actively and directly in biomedical research projects.
More information at: http://carreramedicusmundi.com
II Research Conference: A vision from Legality and Science
Date: May 10, 2019
Place: Assembly hall of the Botanical Garden, Córdoba.
The Córdoba Association of Fibromyalgia, Chronic Fatigue Syndrome and Multiple Chemical Sensitivity (ACOFI and CFS) organized its second research day on May 10. A vision from legality and science. This activity has been developed in the Botanical Garden of Córdoba and has been focused on offering health professionals, social professionals and those affected, a detailed analysis of some of the facets of these diseases that arouse the greatest interest and concern within the legal context. and doctor of these pathologies.
In parallel, the Biobank of the Public Health System of Andalusia will organize an information stand on the Andalusian Registry of Sample Donors for Biomedical Research where it will convey to attendees the importance of donating biological samples for biomedical research in order to incorporate new donors. to the Registry.
More information at: www.acofi.es
Fepamic Associations Fair
Date: March 15 and 16, 2019
Location: Gran Capitan Boulevard, Córdoba.
The Provincial Federation of Associations of People with Physical and Organic Disabilities of Córdoba (Fepamic) has put the final touch on its 30th anniversary with the celebration of the first Associations Fair on Gran Capitán Boulevard.
About thirty associations that are part of Fepamic will participate in the fair and their objective was to carry out activities and workshops of interest to enjoy with the family, provide information to attendees and raise awareness about the different fields of action.
The Andalusian Registry of Sample Donors for Biomedical Research and the Biobank of the Public Health System of Andalusia will actively participate with an information stand where they have presented to citizens and associations the existence of these tools and their role in current research.